Difference between revisions of "Data sharing - Lausanne Open Data Meetup"
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| Line 36: | Line 36: | ||
=Questions to ask/have answers for= | =Questions to ask/have answers for= | ||
| − | * What ethics | + | During the round table we will go through the following questions: |
| − | + | ||
| − | + | * What can personalized medicine offer? | |
| + | * What ethics problematic are at stake with personal medical data and how can the law protect patients? | ||
* What is the current state of the infrastructure for these data and the existing tools for researchers? | * What is the current state of the infrastructure for these data and the existing tools for researchers? | ||
| − | * How much investment is needed today to support this data tsunami? | + | * How to manage these data and ensure confidentiality, but to allow access to researchers? |
| − | * What is the need in | + | * How much investment is needed today to support this data tsunami? |
| − | * Can | + | * What is the need in medical data literacy for its potential users? |
| + | * How many trained people do we need in the area? | ||
| + | * Can citizens take part in this revolution by doing citizen science/biohacking/DIYbio? | ||
=Documentation Output= | =Documentation Output= | ||
Revision as of 16:20, 2 November 2015
What
BSNL / ISCB-RCG Switzerland presents,
Hackuarium presents,
Lausanne Open Data Meetup Special Edition
(This event will be in English)
When
- Thursday 5th November 2015, 7pm
- Practical information: see Open Hackuarium
- Please register here for this event.
Organisers
- Leonor Rib
- Jonathan Sobel
Topics
Biomedical data, medical data transition, ethics and security
Speakers
We are honored to discuss these topics with four important actors in the field that confirmed their participation:
– Jacques Beckmann (Head of Clinical Bioinformatics, SIB)
– Christine Currat (Executive director of the Swiss biobanking platform)
– Manolis Dermitzakis (Professor of Genetics at the Department of Genetic Medicine, UNIGE)
– Jeanne-Pascale Simon (Lawyer at the Unit of Legal Affairs, CHUV)
Target audience
Students, Politicians, Doctors, Data Scientists, Citizens.
Questions to ask/have answers for
During the round table we will go through the following questions:
- What can personalized medicine offer?
- What ethics problematic are at stake with personal medical data and how can the law protect patients?
- What is the current state of the infrastructure for these data and the existing tools for researchers?
- How to manage these data and ensure confidentiality, but to allow access to researchers?
- How much investment is needed today to support this data tsunami?
- What is the need in medical data literacy for its potential users?
- How many trained people do we need in the area?
- Can citizens take part in this revolution by doing citizen science/biohacking/DIYbio?