Difference between revisions of "Data sharing - Lausanne Open Data Meetup"

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'''Lausanne Open Data Meetup Special Edition'''
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New practices and technologies, such as digital medical records and high-throughput sequencing, open new ways for medical doctors and scientists to investigate human biology and diseases. However, this new model raises many fundamental questions. What are the opportunities and how can the medical data be handled in a way that the rights of patients are preserved.
 +
 
=What=
 
=What=
[http://BSNL.ch BSNL] / [http://iscbrsgswitzerland.wordpress.com ISCB-RCG Switzerland] presents,<br>
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[[Hackuarium]] presents,<br>
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'''Lausanne Open Data Meetup Special Edition'''<br>
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 +
Presented by [http://BSNL.ch BSNL] / [http://iscbrsgswitzerland.wordpress.com ISCB-RCG Switzerland] and [[Hackuarium]]
 
<br>
 
<br>
'''Lausanne Open Data Meetup Special Edition'''<br>
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(This event will be in English)
 
<br>
 
<br>
(This event will be in English)<br>
 
  
 
=When=
 
=When=
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* Practical information: see [[Open Hackuarium]]
 
* Practical information: see [[Open Hackuarium]]
 
* Please register [http://www.meetup.com/Lausanne-Open-Data-Meetup/events/223791979/ here] for this event.
 
* Please register [http://www.meetup.com/Lausanne-Open-Data-Meetup/events/223791979/ here] for this event.
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 +
=Speakers=
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We are honored to discuss these topics with four important actors in the field that confirmed their participation:
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* Jacques Beckmann (Head of Clinical Bioinformatics, SIB)
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* Christine Currat (Executive director of the Swiss biobanking platform)
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* Manolis Dermitzakis (Professor of Genetics at the Department of Genetic Medicine, UNIGE)
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* Jeanne-Pascale Simon (Lawyer at the Unit of Legal Affairs, CHUV)
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=Questions=
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During the round table we will go through the following questions:
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* What can personalized medicine offer?
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* What ethics problematic are at stake with personal medical data and how can the law protect patients?
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* What is the current state of the infrastructure for these data and the existing tools for researchers?
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* How to manage these data and ensure confidentiality, but to allow access to researchers?
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* How much investment is needed today to support this data tsunami?
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* What is the need in medical data literacy for its potential users?
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* How many trained people do we need in the area?
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* Can citizens take part in this revolution by doing citizen science/biohacking/DIYbio?
  
 
=Organisers=
 
=Organisers=
* Leonor
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* Jonathan
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* Leonor Rib
* [[User:Shalf|Yann aka shalf]]
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* Jonathan Sobel
  
 
=Topics=
 
=Topics=
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Biomedical data, medical data transition, ethics and security
 
Biomedical data, medical data transition, ethics and security
  
=Speakers=
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=Target audience=
tba
 
  
=Target audience=
 
 
Students, Politicians, Doctors, Data Scientists, Citizens.
 
Students, Politicians, Doctors, Data Scientists, Citizens.
 
=Questions to ask/have answers for=
 
* What ethics problematics are at stake with personal medical data?
 
* What can personalized medicine offer and how do we need to manage data for that?
 
* How to manage these data and ensure their confidentiality, but to allow access to researchers?
 
* What is the current state of the infrastructure for these data and the existing tools for researchers?
 
* How much investment is needed today to support this data tsunami?
 
* What is the need in (Biomed) Open Data literacy for data scientist/doctors and citizens? How many trained people do we need in the area?
 
* Can Citizen Science/Biohacking/DIYbio help?
 
  
 
=Documentation Output=
 
=Documentation Output=
==Speakers Slides==
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[http://bsnl.ch/2015/12/14/medical-data-access-event-report/ Medical Data Access event report]
==Live Coverage==
 
==Pics==
 
  
  

Latest revision as of 15:46, 6 January 2016

Lausanne Open Data Meetup Special Edition

New practices and technologies, such as digital medical records and high-throughput sequencing, open new ways for medical doctors and scientists to investigate human biology and diseases. However, this new model raises many fundamental questions. What are the opportunities and how can the medical data be handled in a way that the rights of patients are preserved.

What

Lausanne Open Data Meetup Special Edition

Presented by BSNL / ISCB-RCG Switzerland and Hackuarium
(This event will be in English)

When

  • Thursday 5th November 2015, 7pm
  • Practical information: see Open Hackuarium
  • Please register here for this event.

Speakers

We are honored to discuss these topics with four important actors in the field that confirmed their participation:

  • Jacques Beckmann (Head of Clinical Bioinformatics, SIB)
  • Christine Currat (Executive director of the Swiss biobanking platform)
  • Manolis Dermitzakis (Professor of Genetics at the Department of Genetic Medicine, UNIGE)
  • Jeanne-Pascale Simon (Lawyer at the Unit of Legal Affairs, CHUV)

Questions

During the round table we will go through the following questions:

  • What can personalized medicine offer?
  • What ethics problematic are at stake with personal medical data and how can the law protect patients?
  • What is the current state of the infrastructure for these data and the existing tools for researchers?
  • How to manage these data and ensure confidentiality, but to allow access to researchers?
  • How much investment is needed today to support this data tsunami?
  • What is the need in medical data literacy for its potential users?
  • How many trained people do we need in the area?
  • Can citizens take part in this revolution by doing citizen science/biohacking/DIYbio?

Organisers

  • Leonor Rib
  • Jonathan Sobel

Topics

Biomedical data, medical data transition, ethics and security

Target audience

Students, Politicians, Doctors, Data Scientists, Citizens.

Documentation Output

Medical Data Access event report