Difference between revisions of "Data sharing - Lausanne Open Data Meetup"

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'''Lausanne Open Data Meetup Special Edition'''
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=What=
 
=What=
  

Revision as of 16:22, 2 November 2015

Lausanne Open Data Meetup Special Edition

What

Lausanne Open Data Meetup Special Edition

Presented by BSNL / ISCB-RCG Switzerland and Hackuarium
(This event will be in English)

When

  • Thursday 5th November 2015, 7pm
  • Practical information: see Open Hackuarium
  • Please register here for this event.

Organisers

  • Leonor Rib
  • Jonathan Sobel

Topics

Biomedical data, medical data transition, ethics and security

Speakers

We are honored to discuss these topics with four important actors in the field that confirmed their participation:

  • Jacques Beckmann (Head of Clinical Bioinformatics, SIB)
  • Christine Currat (Executive director of the Swiss biobanking platform)
  • Manolis Dermitzakis (Professor of Genetics at the Department of Genetic Medicine, UNIGE)
  • Jeanne-Pascale Simon (Lawyer at the Unit of Legal Affairs, CHUV)

Target audience

Students, Politicians, Doctors, Data Scientists, Citizens.

Questions to ask/have answers for

During the round table we will go through the following questions:

  • What can personalized medicine offer?
  • What ethics problematic are at stake with personal medical data and how can the law protect patients?
  • What is the current state of the infrastructure for these data and the existing tools for researchers?
  • How to manage these data and ensure confidentiality, but to allow access to researchers?
  • How much investment is needed today to support this data tsunami?
  • What is the need in medical data literacy for its potential users?
  • How many trained people do we need in the area?
  • Can citizens take part in this revolution by doing citizen science/biohacking/DIYbio?

Documentation Output

Speakers Slides

Live Coverage

Pics